NTSAD Annual Family Conference

Support, Research & Education

Reserve Hotel Room Now!

Please contact Kim Kubilus, Director of Family Services at (617) 277-4463 or Kim@ntsad.org if you prefer a double room or have any trouble reserving your hotel room.

The Annual Family Conference is a wonderful opportunity to connect with other families that truly understand. Parents, grandparents, affected adults and their families gather to learn the latest research developments, discuss health management, honor our lost loved ones and offer one another unconditional support and friendship.

Helping Hand Grants are available to assist families with the expense of attending who otherwise wouldn't be able to attend.

Don't miss this amazing weekend of Support, Research and Education! Read what attendees thought about last year's conference.

The Club You Never Wanted To Be In

Our 6th Annual Family Conference

Keeping Up with NTSAD, Special Conference Edition

Please contact Kim Kubilus, Director of Family Services, at 617-277-4463 or Kim@ntsad.org if you prefer a double room. The Grand Hyatt Atlanta in Buckhead will provide Executive Suite and Corner King upgrades at our group rate to accommodate attendees who require additional room and sleeping space. The Executive Suites and Corner Kings are larger than standard rooms and have pull out sofas. Additional rollaway beds will be provided in Standard Kings at no additional charge.  We sincerely apologize for the inconvenience but remain confident the hotel will provide comfortable accommodations for all our guests. Please do not hesitate to contact Kim Kubilus, Director of Family Services, at 617-277-4463 or Kim@ntsad.org with any questions or concerns regarding your hotel reservation or anything conference related.

Bela Roman (Juv Tay-Sachs) with big brother Sebastian, Mallory Salazar (Juv Tay-Sachs with siblings Matthew and Madelyn, Sabrina Tuleja (Juv Tay-Sachs), Adam Davis (Tay-Sachs) with mom Bonnie, and Kaleb Ogden (Sandhoff)

Sean De Pinto (Late Onset Sandhoff) with brother Chris (Late Onset Sandhoff), Linda Kaplan (Late Onset Tay-Sachs), Vera Pesotchinsky (Late Onset Tay-Sachs) with mom Sophia, David Klauber (Late Onset Tay-Sachs) with mom Sonia, Karin Schroth (Late Onset Tay-Sachs) with Tobi Friesler (Late Onset Tay-Sachs)

Emily Jones (Tay-Sachs), Brielle Walters (Tay-Sachs), Kyle Spencer Hesselbrock (Tay-Sachs), Miss Elliott Benson (Tay-Sachs), and Lacie Wivell (Tay-Sachs)

Celeste Stern (Canavan), Joey Mulligan (Sandhoff), Clayton Mulligan (Sandhoff), Brooke Urban with siblings Surena and Trent and mom Rose and dad Gil, and Ronan Louis Rapp (Tay-Sachs)

Zachary Bloomfield (Sandhoff) with brother Allan, Matija Kresnik (Sandhoff), Alexis 'Lexi' Nikodem (Tay-Sachs), and Holden Reamy with brother Hayden, mom Kelli, grandma Sharon and grandpa Lynn

Jacob Jones (Tay-Sachs) with Uncle Derick, Patrick Garcia (Sandhoff), Harleegrace Gaffney (Canavan) with brother Paul Jr. (Canavan), mom Heidi and Dad Paul, Isaac Sandoval (Tay-Sachs) with mom Lorelei, and Conner Jessen (Tay-Sachs)

Luiza Genova (Sandhoff), Jerries Benyamin (Tay-Sachs), Brooklyn VanSkoyck (Canavan), Zahra Sarfraz (Tay-Sachs) and Sammy Trejo (Tay-Sachs)