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Patient Meeting & Walk
Chicago, Illinois
June 27 - 29, 2014
Welcome! The Oxalosis & Hyperoxaluria Foundation (OHF) is pleased to present the 2014 Patient Meeting & Walk in Chicago, Illinois at Ann & Robert H. Luri Children's Hospital.
The event is free to attend and is open to anyone affected by Oxalosis, Primary Hyperoxaluria & other Hyperoxaluria conditions - patients, relatives, friends & clinicians.
Workshop Highlights
- Patient & Family Social Gathering - Friends Welcome!
- Education Sessions
- "Walk for Kidneys" - A Fun, Inspiring Fundraiser To End Rare Kidney Stone Disease.
Lunch, refreshments and snacks will be provided throughout the day.
Friday, June 27
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6:00-7:00
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Welcome Reception - For OHF Families & Professionals
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Welcome Reception, under Welcome Receptio (For Professionals and Families)
Saturday, June 28
8:30 am - 4:30 pm
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8:30
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Registration - Continental Breakfast
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9:30
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Welcome: Stepping Stones to a Cure Kim Hollander - OHF Executive Director
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10:30
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Understanding the Biological Aspects of PH Christopher Danpure, PhD
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11:00
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Diagnosis of PH Gill Rumsby, PhD
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11:30
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What Does the Future Hold? Dawn Milliner, MD
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12:00
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Panel Discussion: Questions & Answers
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12:30
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Lunch with Professionals
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1:30
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Rare Kidney Stones: What’s the Difference? David Goldfarb, MD
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2:00
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Dialysis & Transplant: What to Expect Elizabeth Lorenz, MD
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2:30
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Drug Discovery Guy Buckland
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3:00
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Break
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3:15
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Advocacy & You Diane Dorman, NORD
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3:35
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How Can I Help Research? Mayo Clinic Study Coordinators
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3:45
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Panel Discussion: Questions & Answers
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4:00
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Closing
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5:00-7:00
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Tour of Chicago (OHF Families Only)
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Sunday, June 29
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8:30 -10:30
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Walk for Kidneys - Lake Shore Park
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Travel & Accommodations
Travel
- To learn more about how to get to Ann & Robert H. Lurie Children's Hospital please go to: www.luriechildrens.org
Accommodations
Mention that you are part of the OHF group to receive a discounted rate based on availability.
For More Information
Please contact julieb@ohf.org.