Contact:
Jenn Pino, National Events Coordinator Canadian PKU & Allied Disorders Inc.
jenn.pino@canpku.org
Registration:
To register, scroll down to the bottom of the page and click on the "REGISTER NOW!" button.
When
Saturday, May 27, 9:00 am to 5:00 pm
Add to Calendar
Where
Gaetz Memorial United Church
4758 Ross Street
Red Deer, AB T4N 1X2
Driving Directions
Free parking throughout
A group rate has been secured at the Radisson Red Deer (6500 67 Street, Red Deer, AB T4P 1A2). A Traditional guest room can be booked for $109 per night (plus taxes).
Reservations can be made by calling
1-800-333-3333 or 403-342-6567 or emailing guestservices@radissonreddeer.com . To receive the special rate, please mention “Canadian PKU and Allied Disorders”.
Room rate includes complimentary overnight parking, fitness club/pool access and wireless internet. To take advantage of this rate, please book your reservation prior to May 13th, 2017.
Please note:
The agenda is subject to change at anytime;
speakers and topics listed are confirmed at time of publication; & there is no discount for attending only part of the event.
Gaetz Memorial United Church | 9 am to 5 pm
Join us at our 2017 event in Red Deer for a day of engaging speakers featuring:
John Adams
CanPKU’s president with updates on CanPKU, Kuvan, and the Disability Tax Credit.
Eileen Blakely
The Register Coordinator for the National PKU Alliance’s PKU Patient Registry project.
Sandra Hughes
A PKU parent who will discuss her experiences with the Disability Tax Credit.
Koen & Keith Kucher
National figure skating champion and his father who will discuss competitive sports and PKU.
Chef Neil
Acclaimed medical diet chef from England, whose philosophy is "PKU Food for All", will demonstrate some PKU-friendly recipes as well as treat us by making our PKU-friendly lunch.
Ida Ngueng-Feze Esq.
Academic Associate at the Centre of Genomics and Policy (CGP) at McGill University who will discuss the need for federal and provincial laws to ban genetic discrimination in insurance and other activities.
Komudi Siriwardena, MBChB, FRACP, FCCMG
Associate Professor at the University of Alberta's Department of Medical Genetics who will discuss "PKU in 2017: Old Disease, New Tricks" together with Dr. Sparkes.
Rebecca Sparkes, MD, FRCPC, FCCMG
Dr. Rebecca Sparkes is a clinical geneticist specialized in the diagnosis and treatment of inherited metabolic disorders (IMDs) at Alberta Children's Hospital. She is a Clinical Assistant Professor of Medical Genetics and Paediatrics in the Cumming School of Medicine at the University of Calgary. In addition to a wide variety of other IMDs, she currently follows 80 paediatric and adult patients with phenylalanine hydroxylase (PAH) deficiency, including phenylketonuria (PKU). Her interests include long-term follow-up of IMDs diagnosed through universal newborn screening, and advancing the knowledge of new treatment options for patients with IMDs, including PKU. Dr. Sparkes will discuss "PKU in 2017: Old Disease, New Tricks" together with Dr. Siriwardena.
As usual we will provide on-site childcare at no additional charge for registered children 12 and under, have several metabolic vendors present with samples, and we will provide PKU-friendly snacks and lunch.
Travel Scholarships are available to assist families in attending our event. The deadline to apply is Sunday, May 7, 2017. Please click here for more information.
Register Now!The Education and Networking Event, including meals, childcare, access to vendors and presentations, requires a nominal fee to confirm participation and defray the costs of hosting the event. If you wish to receive the CanPKU Member discount, please sign up for a membership by clicking here, and take note of your confirmation code. An annual membership fee is only $20 so this does indeed save you money!
CanPKU Member: $15, plus $10 per additional guest
Non Member: $50, plus $10 per additional guest.
REGISTER NOW as SPACE IS LIMITED
THANK YOU AND WE LOOK FORWARD TO SEEING YOU IN RED DEER!